ABSTRACTS

Variation in Interstage Outpatient Care after the Norwood Procedure

The purpose of this study is to evaluate variation in interstage practices and outpatient care in infants discharged home after the Norwood procedure. Data for the first 100 infants enrolled in the NPC-QIC registry were evaluated for 1) discharge communication with primary care physician (PCP) and cardiologist, 2) route of nutrition at hospital discharge, and 3) utilization of home surveillance strategies. This abstract was accepted for the November 2010 AHA conference.

Post-Norwood Intensive Care Management and Patient Experience: Summary from the JCCHD NPC-QIC Registry

This abstract was accepted by the AHA for the November 2010 conference. It reports variations in post-surgical intensive care experience among the first 100 patients entered into the NPC-QIC registry.

Variation in Pre-Operative & Inter-Operative Care for First Stage Palliation for Single Ventricle Heart Disease

This abstract describes the pre- and intra-operative characteristics of the first 100 patients enrolled in the NPC-QIC registry.

NPC-QIC Data Access Agreement

Access to the JCCHD NPC-QIC Registry Database will be granted to a Registry participant for quality improvement purposes and/or for research purposes. This document outlines the policies and procedures.

Research Proposal Form

This form must be submitted with the data access agreement form to jcchdqi@cchmc.org for review by the Research & Publication Committee

LPCH HMP CHOP mtg 022010.Gail Wright.Stanford.doc

Gail Wright from Stanford presented this abstract in February 2010 about the Home Monitoring program. 38 patients were reviewed.

WrightACCabstr101009.docx

This abstract on Home Monitoring Implementation from Gail Wright at Stanford was presented at the ACC in Fall 2009.